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Information and resources

For more information about cancer and cancer treatment:

For more information on managing fatigue, fertility issues, early menopause, hair loss and lymphoedema, go to the Gynaecological Cancer Support website: www.gynaecancersupport.org.au

If you are experiencing a sexual problem because of cancer treatment, you may find it helpful to discuss it with your doctor, or you may feel more comfortable talking to a hospital counsellor, social worker or psychologist. The Cancer Council Helpline on 13 11 20 can also put you in touch with a counsellor or a sex therapist and can provide a copy of the booklets Sexuality for Women with Cancer (Cancer Council New South Wales), Sexuality and Cancer (Cancer Council Victoria) and Emotions and Cancer.

For more information about fertility:

  • The United Kingdom’s MacMillan Cancer Support (www.macmillan.org.uk) has more about cancer and fertility in women.
  • The American Society for Reproductive Medicine (www.asrm.org) has a one-page factsheet for patients on Cancer and Fertility Preservation.
  • Fertile Hope (www.fertilehope.org) is a United States non-profit organisation with online calculators to assess fertility risk and fertility-sparing options for people with cancer.
  • Access (www.access.org.au) is an Australian non-profit organisation that provides infertility support, information and advocacy.

(When reading international materials, please note that some of the information may not apply to Australian patients.)

For information on advanced cancer, the Cancer Council Helpline on 13 11 20 can provide a copy of the booklet, Living with Advanced Cancer.

Sources

We thank the following organisations and individuals for allowing their information to be used in this material:

  • Cancer Council New South Wales www.cancercouncil.com.au
  • National Cancer Institute (USA) www.cancer.gov
  • Karen Carey, Patient First, Western Australian Council for Safety and Quality in Health Care
  • Professor Ian Hammond, WA Gynaecologic Cancer Service, Perth, Western Australia
  • Professor Roger Hart, School of Women’s and Infants’ Health, University of Western Australia, King Edward Memorial Hospital and Medical Director, Fertility Specialists of Western Australia.
  • Dr Stephen Steigrad, Director, Department of Reproductive Medicine, Royal Hospital for Women, Sydney; and Officer for Australasia, International Society for the Study of Trophoblastic Diseases

Information was also drawn from:

  • Hydatidiform Mole and Choriocarcinoma UK Information and Support Service: www.hmole-chorio.org.uk/patients_info_intro.html
  • G Olesnicky, AR Long, MA Quinn, RJ Pepperell, DW Fortune and BLG Kneale, 1985. Hydatidiform mole in Victoria: Aetiology and natural history. Australian and New Zealand Journal of Obstetrics and Gynaecology, Vol 25 Issue 1, pp 1–7.
  • SJ Steigrad, 2003. Epidemiology of gestational trophoblastic diseases. Best Practice & Research in Clinical Obstetrics & Gynaecology, Vol 17 No 6, pp 837–847.
  • NS Horowitz, DP Goldstein and RS Berkowitz, 2009. Management of gestational trophoblastic neoplasia. Seminars in Oncology, Vol 36, No 2, pp 181–189.