|Cancer Australia does not directly access consumer data. Cancer Australia ensures that due regard for the Privacy Act 1988 and relevant state and territory privacy laws, and the security of consumer data, underpins any work it supports.|
The need to improve cancer data in Australia has been widely acknowledged. There are gaps and inconsistencies in data and national data definitions that impact on our ability to evaluate and improve cancer control efforts and outcomes for people affected by cancer.
In response, Cancer Australia has released the following three documents:
- A National Cancer Data Strategy for Australia
- Framework for Specialist Minimum Data Set Development for Specific Cancers in Clinical Cancer Registration - Technical Monograph 1
- Data Sets for Cancer Control and Research in Australia - Technical Monograph 2
The documents were developed by Professor David Roder in consultation with Cancer Australia’s National Cancer Data Strategy Advisory Group, the Cancer Australia Strategic Forum and other key stakeholders. In addition, A National Cancer Data Strategy for Australia was informed by comment and feedback following a period of public consultation.
A National Cancer Data Strategy for Australia, in conjunction with the two technical monographs, aims to provide direction and support for a collaborative effort to improve cancer data development for the Australian community.